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RARE New England


Rare Connections:
Virtual Patient & Caregiver Support Groups

Beginning in June, Rare New England has created a new program, “Virtual Patient & Caregiver Support Groups”, to provide opportunities for adult patients and for caregivers to come together and share their experiences with others facing similar challenges. In this atmosphere, attendees learn from each other and feel supported by people who understand, thus leaving each meeting with feelings of hope. These hour-long sessions are moderated by a trained member of RNE who follows a guideline prepared specifically for this program.

Register and learn more here: Rare Connections – Support Groups (


Rare Disease Week: July 14-22

Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. While we had hoped to host this event in-person, for the safety of all advocates, Rare Disease Week will be going virtual for 2021.

Virtual Rare Disease Week on Capitol Hill 2021 will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more!

Register here!

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